The south Asian Dementia Pathway (ADAPT) study

Posted on
Elderly man laughing with friend

Dissemination event held online on Thursday 13th October 2022

Written by Dr Emily Dodd, Senior Research Fellow and project manager for the ADAPT study.

“An amazing and informative session[1]

Almost 100 people across the UK joined an online dissemination event on Thursday 13th October 2022 to hear about and see in action the new online toolkit that has been recently developed through the research carried out as part of the ADAPT study.  Funded by the National Institute for Health and Care Research (NIHR), the purpose of this study was to create an online toolkit of culturally appropriate assessments and interventions that support people from South Asian communities across the dementia care pathway.

“The lived experiences from the Carers were particularly impactful”

The study was co-led by Rik Cheston, Professor of Dementia Research at the University of the West of England and Dr Sahdia Parveen, Senior Research Fellow at the University of Bradford. This was a truly collaborative project including the Universities of Wolverhampton and Bath and charity partners the Race Equality Foundation and Dementia Alliance for Culture and Ethnicity. Importantly, the study has been fortunate to have a strong and engaged public contributor team who have “kept it real” and ensured the voice of those affected by dementia from south Asian communities ran throughout the planning and execution of the study.

“…this fantastic study and resource”

Previous research has shown that roughly 25,000 people from ethnic minority communities live with dementia in the UK and the largest single grouping are people whose origins are from South Asian countries. We also know that while people from South Asian communities are at greater risk of developing dementia they are less likely to access all points of the dementia care pathway. The study team therefore wanted to bring together in one place evidenced-based resources to support people from South Asian communities affected by dementia along with recommendations to healthcare staff providing relevant services.

“Hugely insightful and the toolkit will be a massive resource for us”

The online event was an opportunity for the study team to share the online toolkit itself alongside the findings of the study and the films developed as part of the study. People who attended the event included those who took part in the study and wider stakeholders including health and social care professionals and voluntary and community sector organisations supporting and caring for people affected by dementia. The hard-hitting and powerful film ‘Kiran’ (an eight-minute true-to-life dramatization of the struggles and difficulties families face when caring for a loved one living with dementia) that was produced as part of the study was also shown in full at the event.   

“Its a game changer for me”

The ADAPT study website and toolkit are hosted by the Race Equality Foundation and can be accessed by visiting the website: https://raceequalityfoundation.org.uk/adapt/.

Please contact the team directly with any questions or feedback you have about the toolkit on adapt@uwe.ac.uk.  


[1] Quotes come from the Zoom chat box during the event

Back to top