Don’t miss out on our up and coming webinars that dive deep into crucial topics like – Data protection during war, governance of confidential research data, and effecting change in healthcare settings.
Be sure to sign up now to reserve your spot! Learn from and engage with subject matter experts on issues that impact us all, expand your knowledge and gain new perspectives and sign up to join in the webinars today. This blog post gives details and sign up links for each webinar.
The webinar schedule is as follows, and you can find out more about each webinar below.
November 29 Governance of confidential research data in low- and middle- income countries
December 6 Part of the team: Effecting change and sharing power in healthcare settings cyber-attacks during armed conflict can be protected.
Governance of confidential research data in low- and middle- income countries
November 29
Time – 18:00- 19:00
Location – Online (teams)
This talk is hosted by Pedro Ferrer Breda and Natalia Eugenia Volkow Fernandez.
Research and policy development on the governance of confidential research data is dominated by the work of academics and government agencies based in high-income countries (HICs). This leaves three quarters of the world’s population faced with a corpus of theory and good practiced guidelines which, although robust and well-established, makes little or no reference to the specific circumstances of low- and middle-income countries (LMICs). It may be that the data governance models developed in LMICS may be easily transferable to other contexts (there is some evidence, for example, that human-centred training adapts well), but in general there is little or no examination of this issue. There is however a large demand; a recent announcement of a training course in data governance for LMICS was 10x over-subscribed within the first two weeks of launch.
Following from this gap, DRAGoN has started a project on the governance of confidential data for research use in LMICs. DRAGoN hosted a symposium on data governance in LMICs aimed at building a network for discussion of solutions of data governance challenges in LMICs. The output of this symposium was presented at a UNECE conference in late September.
Additionally, this project includes a PhD thesis by Pedro Ferrer Breda, which consists of a case study of Mexico’s INEGI (national institute of statistics and geography) and INSP (national institute of public healthcare) to understand data access decisions in Mexico, supported by Natalia Eugenia Volkow Fernandez, INEGI’s director of microdata access.
This talk will describe this project’s current progress and explain future plans for the development of support networks for good governance of data for research use in LMICs.
Part of the team: Effecting change and sharing power in healthcare settings
December 6
Time – 18:00- 19:00
Location – Online (teams)
In this talk, Dr Jessie Stanier and Dr Purtell discuss a recent paper from a project which explored perspectives from patients and researchers to rethink how patient stories were shared with executives at an NHS hospital trust. With a goal to develop a new narrative framework to help patients position themselves as part of the healthcare team, emphasizing shared roles and responsibilities between patients and practitioners.
Their talk will cover the outcomes of this collaborative project, including key support structures and obstacles. They will reflect on the significance of collective voice, accessibility, administrative support, and senior staff buy-in when working to truly integrate patient perspectives in healthcare systems, especially considering austerity measures and the COVID-19 pandemic and look at how their findings can influence relationships beyond those in the NHS.