Bridging the Gap: Governance of Confidential Research Data in Low- and Middle-Income Countries

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DRAGoN Host a weeklong international workshop, reviewing the current gap between Data Governance in high income countries (HICs)  and low- and middle-income countries (LMICs). This workshop will run with two parallel cohorts to accommodate both Eastern and western hemispheres.

What Gap?

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When it comes to research and policy development on the governance of confidential research data, high-income countries (HICs) have taken centre stage. However, this has left a significant knowledge gap for low- and middle-income countries (LMICs), where three-quarters of the global population resides. The existing guidelines and practices, although robust, fail to address the unique circumstances and challenges faced by LMICs. To address this disparity, DRAGoN is organizing a workshop working directly with people in these countries addressing and exploring these issues. This article gives an overview into what the workshop aims to achieve and why it matters to anyone involved in data research.

The workshop seeks to delve into the current state of research data governance in LMICs and uncover the challenges these countries face. Unlike their HIC counterparts, LMICs operate within distinct institutional, legal, historical, and cultural contexts, necessitating tailored data governance models.

The lack of evidence regarding the effectiveness of transferring HIC data governance models to LMICs further emphasizes the need for comprehensive understanding. Additionally, certain data governance issues specific to LMICs have yet to be addressed

The lack of evidence regarding the effectiveness of transferring HIC data governance models to LMICs further emphasizes the need for comprehensive understanding. Additionally, certain data governance issues specific to LMICs have yet to be addressed. By identifying the gaps in knowledge and evidence, the workshop aims to pave the way for data governance practices that are more inclusive and effective.

Exploring Good Practices & Opportunities for Supporting Good Data Governance:

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Despite the existing disparities, the workshop will also explore examples of good practice that could be applied more widely in LMICs. These success stories will provide inspiration and practical insights for data researchers, regulators, academics, governments, and NGOs involved in making confidential data available for research use. By sharing these experiences, the workshop aims to encourage the adoption of effective data governance practices across LMICs.

One of the main goals of the workshop is to identify opportunities for supporting good data governance in LMICs. By bringing together stakeholders from different regions, the event aims to foster collaboration and the exchange of ideas. Over the course of a week small-group discussions will take place virtually, accommodating participants from both the Eastern and Western Hemispheres. These discussions will help generate valuable insights and recommendations for addressing the challenges and improving data governance practices.

To gather additional evidence and insights, a short survey will be distributed to participants and others involved in data research. The survey aims to capture current practices and perceptions regarding research data governance in LMICs. The information collected can then contribute to a comprehensive summary report, outlining the current landscape, trends, disparities, and highlighting any potential ways forward. This report will serve as a snapshot of the current landscape and a  foundation for future exploration by academics and policymakers, stimulating further research and policy development in this vital area.

Bottom line; Why is this workshop so important?

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The governance of confidential research data is a critical aspect of ensuring ethical and effective data research practices worldwide. By acknowledging the unique circumstances of LMICs and addressing the challenges they face, we can foster more inclusive and sustainable data governance models. The workshop organized by DRAGoN is an important step toward bridging the gap between HIC-dominated research and the specific needs of LMICs. It provides an opportunity for stakeholders to come together, exchange knowledge, and collectively work towards advancing data governance practices. By participating in this workshop, you can contribute to shaping the future of research data governance in LMICs and make a meaningful impact in the field of data research.

To register for the workshop or for further information, please visit the event page for more information or contact the workshop planning group at dragon@uwe.ac.uk. We look forward to your participation!

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