We are thrilled to announce the highly-anticipated return of the DRAGoN Research Group Webinar Series. After a brief hiatus, we are back with an incredible line-up of webinars that promise to delve deep into the fascinating world of data, research, and technology. These webinars are entirely free and open to all.
Our first webinar on October 4th is set to kick things off in style. DRAGoN’s very own Dr Francesco Tava has invited a distinguished guest, Dr Pete Barnsley, Head of Special Projects at The Francis Crick Institute. Together, they will explore the topic of Data Consent, exploring the ethics and philosophy of how we share our data now and how we should be looking to change this in the future.
This and all of our webinars are free. To attend please register here.
More details
“Consent by Design” Dr Pete Barnsley Head of Special Projects, Francis Crick Institute, London
How can I, a citizen, help research? Will my lack of agency destroy (societal) trust in data research? What types of problem will future data research be restricted to as a result? What data access frameworks are we building to help my agency?
This talk argues for ‘consent by design’ and ‘rights by design’ in IT systems through a framework of atomic consents. It highlights the value of improved openness for users and benefits from standardization that come from such an approach – the human at the heart of information systems: the creation of a set of ‘atomic consents’ and ‘atomic rights’, the latter derived from General Data Protection Rights, to help architect IT systems that maintain trust and engagement in IT systems (e.g. TREs / SDEs) that support human health, societal and people data use. By combining these atomic consents with the atomic rights (as per data protection laws), a way of expressing requirements and architecture for, and within, IT systems is simplified and standardised. This should save money, ensure extensibility and allow flexibility and transparency as social practice and legal frameworks evolve.
This talk is an innocent start to a (critical) discussion.
Save the Dates:
October 4th, 2023 “Consent by Design”
Dr Francesco Tava & Dr Pete Barnsley, Head of Special Projects at The Francis Crick Institute.
*POSTPONED* Now November 29, 2023 – Governance of confidential research data in low- and middle- income countries – introduction of the project and current progress.
Speakers: Pedro Ferrer Breda and Natalia Eugenia Volkow Fernandez
November 1st, 2023 – TBC
November 15th, 2023 – Socio-technical dimensions of data protection in times of war: the case of Ukraine.
Speakers: Dr Aida Abzhaparova (Senior Lecturer in Cyber Security and Global Politics, UWE Bristol) and Professor Olena Sdvizkova (Head of Department Applied Mathematics, Dnipro University of Technology, Ukraine).
Stay tuned for more details on the upcoming webinars. We’ll be revealing the exciting topics and esteemed guest speakers for each event shortly. Make sure to mark your calendars and keep an eye on our website for registration links, so you don’t miss out on these engaging discussions.